Source: Sickboy Podcast
Keith wears many hats. author, podcaster, speaker but most importantly a rare disease dad. Keith wakes up every day with a single focus. To find cures and therapies for people living with GRIN Disorder. His 13-year-old son is one of those people. In this week’s episode, we dive headfirst into what life is like for a care-taker and parent of a child living with a severe neurodevelopmental disorder. We also explore the work Keith is doing on his new CBC podcast “Unlocking Bryson’s Brain” where he takes us along with him on his journey to find a cure.
*Any creative, cool or unusual quarantine stories to share? Any pearls of wisdom we can learn from? Check out our COVID Stories survey here – https://docs.google.com/forms/d/e/1FAIpQLSd_zvPulkeZOHvkmOQ1Dx4__dh3Z6KVqxVz9fZtTd9lxGfBUA/viewform
Support the podcast on Patreon – www.patreon.com/sickboy
Thanks to Thisten for transcribing this episode – https://thisten.co/event/cbe4d
Follow us on Instagram & Twitter – @sickboypodcast